I don’t even know where to begin.
Let me start out that I love my life. I love my husband… I love my beautiful, beautiful daughter.
Around 6 months old, Aislin wasn’t reaching her milestones. I told her Pediatrician (who I don’t care for) and she told me that maybe I should reach out to Early Intervention.. In which I did.
Early Intervention has been great. By 10 months Aislin sat up, 11 months she started to crawl, and now at a year she is trying to lift herself up everywhere.
BUT there’s something wrong. She is not social.
We take her to group and while all the other children are laughing, clapping their hands, etc… Aislin sits there looking at the ground staring into her own little world. She is so cute (and I may be bias here lol) so a lot of people come up to her expecting this smiley baby when all they get is her looking at the ground not even engaging with them. It breaks my heart.
You see I thought I was STRONG. I thought I can handle anything. I thought. I thought. I thought.
I have been breaking down a lot this week and this is why I decided to start a blog. Maybe I am crazy. Maybe anxiety is making me see things, who knows. But have you just ever wanted to read something that someone had the same thoughts and worries as you did? I know I do.
I’m hoping this blog will not only help other mothers or fathers out there but also heal me in the long run. I want my journey, my daughter’s journey to help people that know that something just isn’t right. I’m sure you all are sick and tired of family members and friends saying that “they are fine,” “you are worrying too much,” “you are a first time parent.”
No, I’m not stupid. No, I’m not making this stuff up. No, she doesn’t act like other children. Ok?
So 8 months… why did I name it this? Well you see Aislin turned a year last week. We have reached out to a developmental doctor and are just waiting back. The paperwork has been returned twice now for missing info and/or not being able to upload it to an email. The wait if they accept Aislin will be for approximately 6-8 weeks. From what we know if she has any sort of form of autism, they won’t even diagnose it until she is 18 months. We are giving ourselves 8 months to try and not to worry about the outcome. Even though it’s hard, we have to try.
Then there’s the God Awful internet.
I have been doing too much research and I need to stop. I think this is the main reason I am posting. Because I really am scared. Aislin is very clumsy crawling, she recently has been holding her hands together in front of her, she licks everything, she’s been so irritable ever since she was born, she doesn’t make great eye contact, when she isn’t holding her hands they are out as if she flying… I first thought Autism but now that I read into things and see things I have this HUGE fear now of Retts Syndrome. And it breaks my heart.
Maybe I sound crazy. Maybe I sound like you. Someone that just wants answers but it’s been this huge waiting game.
I just know that whatever it is… I will love this child uncondtionally and try to make her life as easy as it can be. Am I angry? You bet. Am I sad? Def. Am I confused? The most confused I have ever been.
But in all honesty if you were to ask me if I would do anything different or if I had a chance to have a “normal” child, would I? I wouldn’t give my sweet girl up for anything. I love her so much it hurts sometimes.
I just want to know what is going on with her so the healing can begin.